Quality of life: a forgotten aspect in the patient with hemophilia
Calidad de vida: un aspecto olvidado en el paciente con hemofilia
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Hemophilia is a pathology derived from the deficiency inherited from coagulation factors, commonly linked to the X chromosome that presents different types of hemorrhages. Clinically, hemophilia is classified according to the deficiency of the specific coagulation factor and its clinical picture is composed of hemorrhagic episodes and their complications. Despite the great advances in medicine, hemophilia persists as a chronic disease associated with important ramifications that have an impact on the quality of life. Worldwide, 1 / 10,000 men are affected by this disease, which in our country translates as 3.8 to 4.3 affected per 100,000 inhabitants. Quality of life is an important concept that should be taken into account in the overall approach of patients with hemophilia since the biological factors related to this pathology have a great impact on the physical, social and psychological deterioration of the affected and, to obviate its assessment means perpetuating the deterioration caused by the disease. The measurement of the quality of life of these patients should be routine in clinical practice through the use of internationally validated tools.
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